Saturday, March 24, 2007

Immunologist Visit 21 March

Nothing momentous to report. BP 147/80, Creatinine 142. All good. I told him about the loss of my sense of smell. Turns out that these kinds of things happen and there's not a lot (read nothing) can be done about it. My ANCA wasn't back so if that's elevated (which is doubtful), he'll book me in with an ENT who'll scope me for lesions. Zzzzzzzzz....boring :-)

Apart from the fact that I need to lose a couple dozen kilos, I'm doing well! I get to see him again around the end of June.

I almost wish I had something dramatic to report to make this worth reading!

3 Comments:

At 10:52 AM, Blogger kim said...

Hello, I'm new to this my brother was just diagnosed with this disease and I was wondering if you have any info on maybe the worst case of this disease. We almost lose him a couple of times.we made him a website if your intersted in checking it out I would appreciate any advice or information on this disease he is still in the hospital with this.the website is 1000voices.com/eugene
go all the way to the last entries and check out the bed that saved his life.thanks my email is kymrog93@yahoo.com

 
At 11:40 PM, Anonymous Anonymous said...

Hi, my 43yr old husband was diagnosed with wegeners about a year ago. So far the symptoms have not been too bad. He seemed to be symptom free until recently. Its so hard to see a very athletic, physical man who, aside from a runny nose and eyes that look like cherry tomatoes sit around and be unable to do any thing. I know it bothers him to see me doing all of the yard work and stuff is there something that some one may have said to you to make it easier and less frustrating for you?

 
At 6:58 AM, Anonymous Anonymous said...

hi,

I have just had a kidney transplant and i got a call from the hospital today saying my creatinine was high and its 142. Do you think i should be worried?

Also its great to write down what you have been through, i have done the same http://www.kreativefocus.co.uk/transkid

http://www.kreativefocus.co.uk/blog

 

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