Its been a while...
Even though I'm going to the Immunologist next week, I'm going to write an update now just to prove to myself that I can be proactive if I want :-)Just got over the worst case of the flu I've had for many a year. Had trouble breathing there for a while - was really nasty. It's taken almost three weeks to kick.
Other than that, I'm feeling great although I slipped back off the wagon as far as coffee is concerned. I was having a few cups a day when I was feeling crappy because it made me feel better. I'm basically off it again now but it tasted so good!
Ok there ya go - I finally updated my blog :-) good for me! See you next week!
posted by Andrew MacLean @ 5:35 PM
4 Comments:
Hello,
I'm french near the town of Marseille. My husband has wegener's disease, we know that since months but he has the disease since april .
I have read your blog, it's very interesting. In France, there's 1800 personns who have wegener.
How many people in your country ?
Thank you for blog and comments, answers, etc...
Bye, Luneve from Marseille.
Hey there Luneve :-) I've been to Marseille - great place!
I'm not sure how many people here in Oz have Wegener's. That's an interesting question!
Give your husband my best wishes!
Andrew
I am the St Louis contact for the Vasculitis Foundation, formerly the Wegener's Assn. There are approximately 6000 known cases of WG in the US.
anonymous in stl i live there can you contact me at stlwegeners@yahoo.com. I have been trying to find a local support group. The closest one i know of is a couple hours away in il. Let me know if there is one close. Thanks.
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